What is it that a parent supposed to do when you have a chronically sick child and no matter how much you do or fight to be heard and it just doesn't seem to be enough?
My 7-year-old has allergies to anything that grows beyond anything most doctors have seen and has an infection that we are able to knock down, but not resolve. At this point, we are able to tell doctors what meds we know when and we are not questioned. And yesterday, his allergist that we drive an hour to see looked at the wife and said "I'm out of tricks. We may need to see a pediatric infectious disease specialist even though he is not contageous." That, and he as been on 4 or 5 different antibiotics since Thanksgiving.
All that we do doesn't seem to be enough and, frankly, I feel like I am failing the little guy as a parent because we can't get this cleared.
We may have to be going back to National Jewish Medical and Research Center in Denver (the place where the international-traveling TB guy is at; they are a great hospital). We'll see what comes. Just a really stressful time right now. We are just trying to be discerning about what to do and praying that His will be done (funds for travel, timing and duration, etc).